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ZAGGRIZ4LIFE
Registered: 10/03/06
Posts: 208

    03/17/09 at 10:01 AM
  Reply with quote#31

http://www.montanasnewsstation.com/Global/story.asp?S=10009933&nav=menu227_8

Link to Deckers Story on KPAX ,  email your senators, what is $13 dollars a year for a worthy cause, that is less than 4 gallons of gas.  DO THE RIGHT THING, for someone close to you may be diagnosed with Autism in the future.

JKES DAD
Rich
coteranch
Registered: 07/15/08
Posts: 76

    03/19/09 at 05:16 AM
  Reply with quote#32

The Senate Finance and Claims Committee is expected to debate and take action THIS MORNING!  This leaves us one more opportunity to call 444-4800 and email (addresses are attached on pg 2 of this postiing)!  Thanks everyone for doing your part!  We're almost half way there, if we fizzle out now, so will our bill. 
The Cotes
ZAGGRIZ4LIFE
Registered: 10/03/06
Posts: 208

    03/19/09 at 08:43 AM
  Reply with quote#33

Received this early in the a.m. today


Mr. Janssen,

Thanks for your note on SB234, Brandon's Bill.

The bill will not be acted on today as expected.  Apparently there is some
effort to work on a solution with the insurance companies.

Thanks for taking the time to write.

Greg Barkus SD4




On 3/18/09, Janssen Family <jakenjen@ronan.net> wrote:
>
> Thanks Greg, other states have already passed similar laws and insurance
> companies have not left those states. They make too much money on health
> care to leave, either way, we as a state will pay the $13 somehow, either
> in helping these kids now, or by state institutions or medicaid later
> which will cost allot more.
>
> I appreciate you response to my family.
> Regards,
>
> Rich Janssen
>
> > Janssen Family,

coteranch
Registered: 07/15/08
Posts: 76

    03/19/09 at 08:56 AM
  Reply with quote#34

Unfortunately, these boys know the game.  This is a stalling tactic to push us past the end of transmittal which will make our bill die in committee.  All we can do is urge them to take executive action NOW and not use this technique to make a tough situation go away, because it won't.  I will keep everyone posted if there is more that we can do.  Thanks,Charlie.

coteranch
Registered: 07/15/08
Posts: 76

    03/22/09 at 09:20 AM
  Reply with quote#35

Critical trip to Helena planned for tomorrow and we need you there!!!  Please let us know if you can come.  We need warm bodies and a lot of them to get our momentum back from this timely stall that the insurance companies have pulled off.  We have to tell them that we support Children above Industry.  We are planning on being at the capitol steps Monday morning with placards dressed in red and try to get some media coverage.  Let us know if you can help!!! 
Again, email and call like crazy, they need to be flooded and know that we are not giving up.  Don't let them forget the human factor of this issue.  Thanks everyone!!  Call or email us if you can attend or help!
Will and Charlie
coteranch@ronan.net
676-0103
coteranch
Registered: 07/15/08
Posts: 76

    03/23/09 at 07:54 PM
  Reply with quote#36

Our trip to the capitol was very fruitful today.  We were able to draw a crowd and the media and orchestrated a press conference in the rotunda of the capitol building.  Decker got to go along with one of our ABA teachers and Carter, who is the best big brother in the world.  He stood by the podiem with a sign to vote for his baby brother.  He made the Helena news, very cute and very powerful.  Then off to the committee we went where executive action was taken and we won with a vote of 11-8.  YES!!!!  The bill had a small ammendment made so we have to go back to the senate floor for debate and 2nd and 3rd reading which will happen in the next couple days.  Now we can contact ALL the senators over the next 48-72 hours.  Thanks for all you do. 
The Cotes

Also a HUGE thank you to the Round Butte Woman's Club, your support to our family is such a blessing.  Love you!!
coteranch
Registered: 07/15/08
Posts: 76

    03/24/09 at 07:34 PM
  Reply with quote#37

SB 234 just passed 2nd reading on the senate floor 37-13!!!!  This is huge...3rd reading is next which will not be a problem and then we are off to the house...so we can start contacting the house representatives next...thanks for all you do.  God is good!!!

coteranch
Registered: 07/15/08
Posts: 76

    03/25/09 at 04:55 PM
  Reply with quote#38

We have officially made it out of the Senate.  Look out house here we come!  Thank you for all you have done...now we can start contacting those representatives!!!!
The Cotes
saddlebredrider
Registered: 02/21/08
Posts: 8

    03/26/09 at 08:53 AM
  Reply with quote#39

WAAAAAHHHOOOOO!!!!! CHUCK, WILL, CARTER, DECKER AND TIMBER - YOU ARE "AWESOME!" God is so good and your persevering faith is a testament to us all!!! The House is made of man and cannot stand when God comes rollin' through Rep. Diane Sands from Missoula will be a good advocate....

coteranch
Registered: 07/15/08
Posts: 76

    03/26/09 at 09:34 AM
  Reply with quote#40

Here is a letter to the editor that I wrote to the leader and the journal and wanted to share it with all of you...

Dear editor,

Over one year ago, our family embarked on an adventure, recovering our son from Autism.  What a ride it has been.  Initially, it was terrifying, and we allowed ourselves to feel that for about two seconds.  Then, it was time to go to work.  Support from our community has been one of the greatest things we've had to lean on, besides God and each other.  As with most things of this nature, the initial shock dissipates and people tend to move on.  In our case, we have tested these relationships in the fires and have been held up by the ones made of gold.  Recently we were reminded of this very thing...I am a lifelong resident of the great Round Butte area and have always taken pride in that.  It's an area filled with warm hearts,hard working people, great neighbors and is a great thing to be associated with. Over the last couple years, myself and a few other 'younger' women recognized that and decided to join the Round Butte Woman's Club.  This is a wonderful group filled with dear people, past and present.  It is an invaluable tradition that we want to see continue.  Many of them have known me my entire life and welcomed me and the rest of the 'new blood'.  Well, it didn't stop at welcoming.  This Saturday after attending one of the club's events, the Spring Fling Brunch, a few members of the club knocked on our door.  They entered our house and we enjoyed a nice visit, then they entered our hearts by donating a large cash donation for our son Decker and his therapy.  This little organization is not one that raises huge amounts of money and usually the profits are ate up by maintaining the old building itself just so it can keep the tradition alive and provide a nice meeting place for our little community.  The donation touched us deeply and reminded us that God is good and these wonderful women are a vessel that He works through.  Thanks ladies, your support and that of the rest of the community is an integral part of our son's life and his future. 

Will, Charlie, Carter, Decker and Timber Cote

coteranch
Registered: 07/15/08
Posts: 76

    03/27/09 at 01:04 PM
  Reply with quote#41


SB 234 will be heard in House Appropriations Wednesday, April 1st.  Here are there names and email information.  Please contact them in support of the bill, also follow up with a phone call to 444-4800.  At that number you can leave messages for 5 legislators at a time in support of SB 234.  Again, please contact us if you are interested in going to the hearing with us.  We need all the warm bodies there we can get.  Thank you for all you do...we're half way there.

The Cotes

 

Committee Members

MemberAssignment
Jon C SessoChair
Duane AnkneyMember
Dennis GetzMember
Bill E GlaserMember
Ray HawkMember
Teresa K HenryMember
Cynthia HinerMember
Roy HollandsworthMember
Galen HollenbaughMember
Llew JonesMember
Dave KastenMember
Bill McChesneyMember
Walter McNuttMember
Robert MehlhoffMember
Penny MorganMember
Bill NooneyMember
Carolyn Pease-LopezMember
Don RobertsMember
Cheryl SteensonMember
Dan VillaMember
Jon MoeLegislative Branch Staffer
Samual SpeerschneiderSecretary

 



coteranch
Registered: 07/15/08
Posts: 76

    03/28/09 at 10:07 AM
  Reply with quote#42

FYI...April 2nd is World Autism Awareness Day...wear red and make a committment to talk to at least one person about Autism...awareness is the key. 

coteranch
Registered: 07/15/08
Posts: 76

    03/30/09 at 06:38 AM
  Reply with quote#43

HELENA TRIP COMING UP WEDNESDAY.  ANYONE INTERESTED?  PLEASE CONTACT US.  IT IS SUCH AN EXCITING THING TO SEE AND WE WOULD LOVE TO BRING YOU ALONG. 

Side note:  Decker spends a lot of time in his classroom...that is the understatement of the century.  He is tired of the toys in his classroom and could use some fresh stuff.  Any normal, age appropriate (3) stuff.  Let us know if you have anything like that you'd be interested in donating.  Thanks!
ZAGGRIZ4LIFE
Registered: 10/03/06
Posts: 208

    04/02/09 at 08:53 AM
  Reply with quote#44

April is Autism Awareness Month,  Pray for those afflicted with this disability,

JKES DAD


More Autism in the news

http://www.cnn.com/2009/HEALTH/04/02/autism.update/index.html?eref=rss_topstories

(CNN) -- William Searing is an Eagle Scout who loves hiking, adventure, art and sports. At age 19, he's in an education program that bridges the gap from high school to getting a job. Wil has autism.

Doctors diagnosed Wil Searing, 19, with autism when was 18 months old.

Doctors diagnosed Wil Searing, 19, with autism when was 18 months old.

Click to view previous image
1 of 2
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The neurological disorder was diagnosed when he was 18 months old.

Mia Newman's epilepsy and autism weren't diagnosed until she was almost 3 years old. Now 9, she and her family still face many challenges in coping with her conditions.

It's been a year since the first U.N.-declared World Autism Awareness Day. In those past 365 days, nobody has discovered the cause of autism, which the most recent statistics from the Centers for Disease Control and Prevention suggest affects one in 150 children. Nor has a cure been found. However, new research and major court decisions have emerged to explain further what may contribute to the developmental disabilities of the brain known as "autism spectrum disorders" or ASDs.

One thing that has been known for a while is that there is not one type of autism, but rather several types under the autism umbrella, including Asperger's syndrome, classic autism and pervasive developmental disorder-not otherwise specified (PDD-NOS). More and more doctors and researchers are referring to autism as autisms (plural) because each child's case is different, as are the causes, helpful therapies and potential future cures.

While the past year hasn't yielded definitive answers, new information about what may or may not cause autism, prevalence and accompanying issues like paying for treatment have made headlines.

Here are just a few:

Do vaccines cause autism?

In 1998, a theory emerged that the measles-mumps-rubella (MMR) vaccine caused autism, the theory being that the vaccine lingered in the gut, causing gastrointestinal problems, and that those GI problems led to autism.

A few years later, the very small study that was the basis of this theory was debunked and discredited. However, this did not quash the belief among many parents that vaccines caused autism, leading them to stop or delay immunizing their children.

Since the first World Autism Awareness Day last year, a couple of studies and a major court decision declared definitively that vaccines do not cause autism.

In September, researchers in the United States and Europe re-created the original 1998 study, even using one of the same laboratories to analyze their results. The study authors concluded that "no evidence" linked the MMR vaccine to autism or the GI problems.

While many experts said this study is conclusive and "puts the issue to rest," some groups that hold to the belief vaccines are the cause of autism called the research flawed.

Another study, published in the March 2009 issue of Pediatrics, provided an explanation of why the MMR vaccine does not cause GI problems and autism.

Daniel Campbell, a researcher at Vanderbilt University, suggested that he has found a reasonable explanation for why many children also have GI problems. According to his research, a genetic variation of a protein called MET contributes to both autism and GI problems, rather than GI problems causing autism.

In addition, a decision inside a courtroom rather than a laboratory drew the conclusion that the vaccines do not cause autism.

On February 12, a special vaccine court ruled in three test cases, representing more than 5,000 families, that the "combination of the thimerosal-containing vaccines and the MMR vaccine are not casual factors in the development of autism."

It's probably still too early to tell whether these rulings changed anyone's opinions. "I don't think they were terribly important," said Dr. Bryan King, director of child psychiatry at Seattle Children's Hospital. He said he doesn't believe it will change the minds of those who strongly believe vaccines cause autism.

"We still support research that would potentially identify small groups with underlying medical or genetic conditions who may be more vulnerable to the adverse effects of vaccines," said Dr. Geraldine Dawson, the chief science officer of Autism Speaks, the nation's largest advocacy group.

"For the vast majority of kids, vaccines are safe and we support vaccine programs," Dawson said, adding that more research into vaccines is needed.

Are autism rates going up?

Using data from 2000 and 2002, the CDC released a report two years ago with the statistic that one in 150 8-year-olds have autism, up from the previous estimate of 1 in 166. What remains unclear is if the numbers really went up or if counting these children differently led to the increase.

According to a study done by the MIND Institute at the University of California-Davis and published in January, "The incidence of autism rose seven- to eightfold in California from the 1990s through the present."

"The incidence of autism has not yet plateaued," said Irva Hertz-Picciotto, lead author of the study. "We don't know the reason for the increase." But she said that expanding the definition of autism and greater awareness and diagnosis alone can't account for the increase. "Looking at the environmental cause of autism is the next logical step" to find more answers, she said.

A Danish study from December seems to suggest the opposite. It concluded that the shift in age at diagnosis, "especially the earlier diagnosis at younger ages, artificially inflated the observance of autism in younger children."

Dr. Max Wiznitzer, a child neurologist at Rainbow Babies & Children's Hospital in Cleveland, Ohio, has been treating children with autism for more than 30 years. He said he's still not quite convinced that the incidence is going up either. One explanation is that the way autism cases were counted in the CDC study and in the California study are not the same. "We need to investigate if there's a true rise," Wiznitzer said.

What are environmental factors?

In the past year, more has been said about exploring how environmental factors, in addition to genetic factors, may contribute to autism.

Hertz-Picciotto said environmental factors include anything that's not in the child's DNA, from viruses and bacteria to chemicals in the brain or personal care products. She said more research needs to be done.

CDC epidemiologist and autism researcher Diana Schendel said that any nongenetic factor, including a mother's illness during pregnancy or treatment of a baby in the hospital during or after birth, are other possible environmental factors.

The CDC is conducting a five-year study at six sites looking at genetic and environmental risk factors for autism.

Autism Speaks also said studies should look more closely at environmental factors. "Everything from vitamin D to folic acid, a mother's health condition or pesticides" may play a role, said Dawson.

Her organization recently announced it is investing $5 million to fund studies on genetic and environmental risk factors for autism.

How to afford therapies?

Another issue that has gained momentum in the past year is how to pay for the therapies and treatment for children with autism and the now growing numbers of adults with autism.

Elizabeth Newman, Mia's mother, is helping raise $10,000 for five families in her hometown of Atlanta, Georgia, because she knows how difficult it is to pay for treatments that helped her daughter (more information at http://www.livingthemosaic.com/ ).

Wiznitzer said that one of the ongoing issues for the parents of the children he treats is "What will we do with them as adults?" He said there is an urgent need for developing programs for adults with autism to be productive rather than putting them in institutions.

Most of the 8-year-olds who were counted in the CDC study in 2000 are now becoming young adults. However, there are few programs to help them when they are too old to receive therapies through the educational system.

Dawson said she's encouraged to see the Obama administration earmark $211 million for autism research and more.

According to the 2010 federal budget proposal, "the president is committed to expanding support for individuals, families, and communities affected by ASD."

"One of the things that Obama featured in his plan is money toward adult services," Dawson said.

Wil's mom wants her adult son to be the best he can and the happiest he can -- but she also wants him to be a productive citizen.

"I want to get a job," Wil said. "I want to be a designer -- I will have to learn how to be a designer." He hopes to go to a college with special programs for students with disabilities. He's already designed business cards for a few people; his mom hopes this might be something he could do professionally in the future.

Aside from doing the morally right thing, Jane Searing said, funding more programs for adults with autism makes economic sense.

"If you get them employed, you won't have to pay for them forever," Searing said, adding it's much better to "turn these people into taxpayers instead of tax takers."

coteranch
Registered: 07/15/08
Posts: 76

    04/02/09 at 01:03 PM
  Reply with quote#45

Today, April 2nd, is World Autism Awareness Day!  I pray that this special day brings hope, awareness and understanding for all of us affected by Autism. 

Another successful day in Helena yesterday!  We testified before House Appropriations and they may take action as early as this afternoon.  Please take 2 minutes NOW to call and leave messages for these Reps.  Focus on the republicans...Also email them.  Ask them to take action with no amendments of sunset provisions.  Please call me with any questions!!!  Thanks everyone...we've come too far to fizzle out now. 
Charlie

Committee Members

MemberAssignment
Jon C SessoChair
Duane AnkneyMember
Dennis GetzMember
Bill E GlaserMember
Ray HawkMember
Teresa K HenryMember
Cynthia HinerMember
Roy HollandsworthMember
Galen HollenbaughMember
Llew JonesMember
Dave KastenMember
Bill McChesneyMember
Walter McNuttMember
Robert MehlhoffMember
Penny MorganMember
Bill NooneyMember
Carolyn Pease-LopezMember
Don RobertsMember
Cheryl SteensonMember
Dan VillaMember
Jon MoeLegislative Branch Staffer
Samual SpeerschneiderSecretary

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